Guestbook

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Date: Wed, 02 Feb 2005 05:05:50 +0000
From: (Address withheld)
To: ashermansbook@yahoo.com

hello there,i just stoppped by your site and wanted to say that i think losing a baby in whatever way we lose our baby it is the hardest pain to deal with.

may god lift us up in prayer

love and healing hugz

amanda
xxxxxxx
www.indogo.karoo.net/mybabyyourbaby.htm

From: (Address withheld)
To: ashermansbook@yahoo.com
Subject: ashermans syndrome
Date: Sun, 9 Jan 2005 18:04:37 +1100

I was diagnosed with ashermans syndrome after i was accidently given a d+c after i had just had one, i ended up having 6 operations to reverse the problem over 6 months, it ended with a hysterectomy all at the age of 23. neither myself or my husband could work for 6mths, we lost our car, home + everything we owned. i tryed to sue the hospital for negligence only to claim back what i had lost. Even though there was a communication error between surgeons i was accidently given the same operation twice which they admited, there conclussion was even though they removed the entire linning + myometrium behind the uterus it was an act of god that caused it to adhere together.+ they could not be held responsible for anything, i lost the case and had no alternitive but to claim bankruptsy. I have now just found out 3 years later there is a support service out there for people like myself. When this all happened the hospital told me there was no resourses around to deal with these issues + told me to see a general counceller. So well done for helping those many other women suffering ashermans syndrome, i only wish i knew of this service sooner.

To: ashermansbook@yahoo.com
Subject: Ashermans
From: (Address withheld)
Date: Wed, 5 Jan 2005 11:10:06 +0000

My name is Sarah, I stumbled upon your website after being told i may be suffering with Ashermans Syndrome! I haven't had a period now for 7 months and each month i am doubled up in total agony with tummy pain which is agonising yet i have no bleed!

To me this is all quite scary as i want nothing more than to have children one day but i've read some of the success stories on your website and it gives me hope.

At present i'm waiting for a HSG to be done and the sooner the better as I just want to know whats going on inside my body.

I realise now that Ashermans is quite rare so your website is very much appreciated.

Keep up the good work.

England

Date: Sun, 21 Nov 2004 17:43:35 -0800
From: (Address withheld)
To: ashermansbook@yahoo.com
Subject: success story after ashermans

In 1999 after taking 3 1/2 years of trying, we became pregnant. I was induced and Isabella was born on Dec. 5 1999, 8 days after her due date. After bleeding for 7 weeks I had a D&C because of placental tissue remains. After a year without a period, a fertility specailist told me I had Ashermans Syndrome. I had an (HSG). He told me my cervix was scarred shut. Jan. 2001 I had a diagnostic laparoscopy done. The Dr. said he made an opening but also punctured my uterus but it should heal in 4 weeks. I felt good after the surgery but 3 days later I felt worse then before. At the 4 week (HSG), the dye did go up into the opening he made, then up into the lining and out the side of my uterus. I watched this as the test was being performed. The Dr. then stopped the test and told me I would probably not be able to get pregnant again. Thinking back to the why I felt so good and then so bad after the surgery. Before the surgery I had to take a gallon of Go-lightly to clean out my intestines. When they filled back up again I was then experiencing the infection in my intestines that I will find out about later. At that time I thought I was dying and I was only 30.

I believed my body was overeacting. First having a hard time getting pregnant, then retaining tissue, scarring after a D&C , a uterine puncture not healing after 4 weeks, I decided to get a second opinion so I found an herb specialist. He told me I had virus in my system, bacteria, yeast, parasites for 12 years, and I also found out I wasn't drinking enough water and I had to learn how to eat healthy. Overwhelming? Not really, I just took it one step at a time. Finally after 10 months of herbs and 15 minutes of acupunture my period started. Without my health being up to par I did get pregnant and miscarried at 16 weeks in July 2002. In 2003 I became pregnant .and under the careful eyes of my new OB and my herb specialist I delivered (by c-section) 4pound 17 inch Olivia Lynn 5 1/2 weeks early on Jan. 20, 2004. She is 10 months old and doing very well, we are blessed to have both our girls.

I am willing to give more detailed information upon request.

Thank you for allowing me to tell my story.

From: (Address withheld)
To: ashermansbook@yahoo.com
Subject: my story
Date: Mon, 25 Oct 2004 21:25:46 -0400

you really shouldn't limit women and their stories on this to 200 words, your website is ridiculous to join so here is my story in more than 200 words.....

I am in the process of finding out how much a victim of a medical mistake I was. I currently live in Little Rock, Arkansas. My husband and I were compassionately reassigned here from Fayetteville, North Carolina as he is active duty military and currently deployd. On January 27, 2004, we gave birth to our beautiful Olivia. Olivia is the light of our lives, she is our only daughter. We found out shortly after her birth that she had been diagnosed with Down's Syndrome. We were devastated needless to say. Three months later, we found out she was in congestive heart failure and had two holes in her heart. We were told she should have had a test to determing that after birth but must have been overlooked as the person who performs that test was on vacation. I gave birth to Olivia in a military hospital, where might I say that barbaric situations and conditions still exist. I went into the hospital on January 25th as I was having signs of labor, the doctor sent me home even after finding that I was already dialted 2 cms. We have since received a medical questionarre asking us about this doctor and his care as he is under medical review. Two days later, I went back to the hospital, the nurses stated I was dialated 9 cms and there may be no time for an epidural. An intern/resident delivered my baby. I did not know this until after the fact. My placenta tore and I had what is called retained placenta, the intern proceeded to dig and dig and pull out placenta as I bled and bled. She finally called in the doctor, of which was the doctor that sent me home two days prior. I almost bled to death. I clinched to the doctors arm as I was in such pain, he said "Ma'm let go of my arm" as their arms' were all the way into my abdomen digging out placenta. I continued to pass blood clots once in my room and fainted. They believed me to have still retained placenta and performed a vaginal ultrasound and concluded there was none. Twenty-one days later I thought I would die, I had abdominal pain so bad that I could not walk. I continued to pass blood clots, bled in my bed, and remained weak as I was trying to take care of my 5 lb 14 oz Down Syndrome baby. I went back to the hospital at this point to the ER in such pain, the intern that delivered me sent me home saying it was normal. The next night I went back to the ER, the doc confirmed I had retained placenta and had an infection. I was hospitalized and had to have an aggressive D&C to remove the extensive amount of placenta retained. I have since found out that due to all of this, I have Asherman's Syndrome in the worst stage, I may never be able to have another baby again. The doctors back at the military hospital informed me that whoever read the ultrasound initially must have just overlooked the retained placenta. Ha, well, now that overlook has caused me a lifetime of uncertainty. Please help me get the word out on the risks of D&C's as many young women have these to abort babies. Many women have them without control as did I but still need to be aware of the risks involved as I was never told. Please let me get this story out, had I known about all this, I could have been more informed and aware of the conditions and symptoms to look for. My story continues but I won't go into all that, Olivia has since had open heart surgery to close two holes in her heart and is striving and keeping me whole as my husband is deployed. I am having to attend her doc appts as well as mine during his deployment as our lives have forever been changed. God Bless !

From: (Address withheld)
To: ashermansbook@yahoo.com
Subject: Message from the U.K.
Date: Tue, 7 Sep 2004 21:58:47 +0100

Hi !

Sometimes feel I’m the only one in the U.K. with this condition – my gynaecologist has never treated this before . After two operations he isn’t very hopeful ,but I don’t have a lot of information as to the severity of the problem. Anybody out there with any thoughts ? Any at all would be really appreciated.

From:(Address withheld)
To: ashermansbook@yahoo.com
Subject: Ashermans: a long journey
Date: Sun, 29 Aug 2004 17:51:06 -0600

Just wanted to say thank you for all of the info on Asherman’s Syndrome. After a D&C performed after miscarriage and a surgical correction of bicornuate uterus the following year to prevent further miscarriage, I developed a severe form of Asherman’s. It has been very scary to live with, especially because it is rare and physicians are baffled by the reason for the missed periods and pain. They all put me on hormones with no results, as well as two “normal” transvag. ultrasounds. I lived with Ashermans for 9 months before going to Johns Hopkins Hospital in Baltimore, MD. The infertility specialist there, Dr. Nikos Vlahos, is excellent. Unfortunately, my journey with Asherman’s has not ended, despite excellent medical care. I have been through 2 additional surgeries to remove adhesions. I am hoping that I can have a success story one day. Your success stories have opened my eyes and given me the hope that all women deserve of bearing healthy children. Thank you, and god bless all of you women out there suffering with this painful disorder. Know that prayers do bring answers and whatever the future may bring, may you have the strength and courage to deal with them.

Subject: Never knew about Ashermans before
Date: Wed, 7 Jul 2004 16:46:58 +0930
From: (Address withheld)
To: ashermansbook@yahoo.com

Hi

I've been trying to conceive for 6 months now and lately I have curious about whether a few events after the birth of my first child are affecting my fertility in any way. My son is now 2 1/2 I had a postpartum haemorrhage of about 700ml (if my memory serves me correctly!) and had huge clots for the first couple of days after birth. About 10 days after the birth I had a D&C as it appeared that I had retained placenta (and a bit of an infection from it). I then did not get my period back until 11 months after birth (gave up breast feeding altogether at 5 months), but in the last 3-4 months before I got my period back, I had excruiating pain monthly and had a number of ultrasounds that found nothing conclusive. Once my period came back, I no longer had this pain.

I have 28-29 day cycles now which seem normal. I went on the pill a year after the birth of my son (once my periods came back) and have been off them for 7 months trying to conceive.

Finding this information today on Asherman's Syndrome has been a real eye-opener. Could this be a possible reason why I am not getting pregnant? (I got pregnant straight away with my first baby). I'm 30 years old. Do you think it would be worth talking to my Doctor about this??

From: (Address withheld)
Date: Thu, 6 May 2004 14:39:03 EDT
Subject: (no subject)
To: ashermansbook@yahoo.com

Fifteen years ago I had an abortion. Prior to that I also was diagnosed with Chlymadia, which I was treated for with antiobiotics. Now, my husband and I have been trying to conceive for almost a year and a half. After all the tests I was just diagnosed with Asherman's. My doctor is recommending surgery to repair the back and left side wall from being adhesed together. She wants to do the lap/hyst and says she is unable to tell the severity of the scarring until she goes in. My HSG showed both my tubes are open, but my walls are stuck together. I do have 8 to 10 day periods, which she says is good and my ling shows to be good too. She also told me my FSH is at 10.2, which means my eggs are diminishing. My husband ...has been told his sperm count is not only low, but his motility is bad and the sperm die within 24 hours. The doctor suggests in vitro after the AS surgery. I feel extremely overwhelmed by all of this and am trying hard not to feel guilty for my previous actions. I am scared about the surgery and the complications from that itself and then all the other possible problems from doing the IVF/ICSI. I have always wanted to be a mother ... My husband and I are scared and emotionally drained and really dont know what to do. We have thought of adoption and really consider that as the option to take, but at the same time wish we had our own. Thank you for having this site, it has been informative and I am so glad to know that this isnt as "rare" as I thought. I am so happy for all the women on this site who have had success.

From: (Address withheld)
Date: 2003
Subject: (no subject)
To: ashermansbook@yahoo.com

I had my second "missed" miscarriage in june of this year and a d&c followed since then i had no periods but SEVERE abdominal pain every month when i should have been having my period, following an abdominal scan i have just been told by my g.p that i most likely have Ashermans (he has refered me for confirmation),though from what i have read on this website i am 100% that the diagnosis is correct. My g.p on receiving the scan report didnt know what Ashermans syndrome was!!, so i came home and got onto the internet wher i found this excellent site which told me everything that i needed to know (apart from will i continue to have these agonising pains every month), thankyou so much.

From: (Address withheld)
Date: 5/20/2003 7:30:35 AM Eastern Standard Time
Subject: Ashermans a Syndrome but not a Life Sentence
To: ashermansbook@yahoo.com

Ashermans has been part of my life for 14 years, and believe it or not, the absence of a monthly cycle does becomes another way of life. However, if children are wanted then professional help is probably the right way to go. I myself am blessed with two beautiful children and although my body does not function (the so called natural way) I do ovulate and I am and feel every bit a woman.

I think for all who have viewed this site, we share a similar story and lots of sadness and fears that were waiting to surface.

Thanks for helping Asherman sufferer's understand real nightmare's and to see forth an enlightened path of faith once again.

Best Regards
M. McLaurin-Smith

From: (Address withheld)
Date: Mon, 24 Feb 2003 10:37:05 pm GMT
Subject: Guest book reply
To: ashermansbook@yahoo.com

I cannot tell you how thankful I am to have stumbled upon your website. I am going through a very scary and emotional time right now in that I’m trying to conceive my first child and have had complications due to adhesions following gynecological surgery. I’ve had three surgeries (one laparotomy/myeomectomy and two laparoscopics for the removal of the dreaded scar tissue.. Without going into my entire long story I am desperately looking for a specialist with experience with ashermans and uterine adhesions. I live in the Youngstown area (near Cleveland and/or Pittsburgh). No one can seem to give me any direction. As for your website, it gave me so much hope. It was so comforting to know there are other gals out there with the same problems. How wonderful it was to read their stories. I felt like I knew them! I would LOVE to be a part of your group. Thank you to whoever developed this web site.. You truly don’t know what you did for me. I would greatly appreciate any direction anyone can give me, especially regarding a specialist.

From: (Address withheld)
Date: Sat, 1 Feb 2003 2:11:10 pm GMT Subject: Guest book reply
To: ashermansbook@yahoo.com

hi great site--just recovering from a hysteroscopy/laparoscopy from lysis of adhesions ,currently with balloon!!!! this is my second try---after my last surgery and 6 pregnancy losses, i had a beautiful baby girl who is now 3 years old!! Hopeful that it will work again, i do have a great doctor!

Love to know someone else with ashermans!

Connie

From: (Address withheld)
Date: Sat, 1 Feb 2003 5:51:35 am GMT
Subject: Thank you
To: ashermansbook@yahoo.com

Hi,

My name is Cherie and I was diagnosed today with Ashermans Syndrome and feeling a little overwhelmed. I had my beautiful baby girl in April 2002 and bled for 8 weeks until I had the D&C. I breast fed my daughter until November then I was put on birth control pills and never started my period. I went through the HSG which was unsuccessful because he couldn't get in the opening of my uterus. Today I saw a reproductive endocrinologist and he performed a sonohystogram. I will be having the hysteroscopy in the next few weeks. Any way, I just wanted to tell you that I found your web site VERY informative and I thank you.

Thanks for listening,

From: (Address withheld)
Date: Fri, 31 Jan 2003 3:18:10 am GMT
Subject: Guest book entry
To: ashermansbook@yahoo.com

For ten years now I have had various subtle uterine occurrences. It was not until recently that I have a name for what has been happening. Each year it has been something and each year it has gotten a little more painful. I have not had a cycle for over a year and when my doctor tried to do the hysterosalpingogram (?) we had no luck of the catheter entering the uterus at all. Until finding this particular website I did not fully understand what was happening. I found the website to be quite helpful and it made me feel alot better about my decision to have a hysterectomy.

Catherine

From: (Address withheld)
Date: Thu, 30 Jan 2003 1:58:57 am GMT
Subject: Web-site
To: ashermansbook@yahoo.com

Thank you for your informative and well-done web site. The personal stories really helped me to see that my own situation is not hopeless and that there is hope. My husband and I had primary infertility and were finally able to conceive a child after administration of a year of pills and finally, one course of injectibles. Our son was born in 1999.

We decided to wait and enjoy him for a awhile. When we finally tried to conceive again, I was diagnosed with Asherman's and am facing surgery. Yuck!

Anyway, thanks for the info. It has been a great help!

Kim

From: (Address withheld)
Date: Fri, 6 Sep 2002 2:20:24 PM Eastern Daylight Time
Subject: (No subject)
To: ashermansbook@yahoo.com

Excellent site
I would very much like to become a member of any support groups you may run or know of. Please contact me at the below email addresses to inform me of any support groups that may be available.

Thank you for your time and for a great and informative website

Best regards,

kimberly

From: (Address withheld)
Date: Wed, 7 Aug 2002 21:48:44 +0200
Subject: (No subject)
To: ashermansbook@yahoo.com

Thanks, this website is just great. Finally, some information about Asherman. It’s been of great help to read about other women with Asherman.

Marianne

From: (Address withheld)
Date: Sat, 3 Aug 2002 5:31:36 PM Eastern Standard Time
Subject: (No subject)
To: ashermansbook@yahoo.com

Thank-you!!

I delivered my son in January 2000 by emergency c-section. The most awful experience of my life to say the least! I was in the hospital for a week because of a fever--which noone could explain. I have not yet had a period since march of 1999. Reasons were: still breastfeeding......your body is concentrating on fighting chrons disease....prolactinoma....the list goes on. I've taken so many birth control pills, hormones, blood tests, MRI's, seen an endocrinologist who told me "Just because you dont get your period, doesnt mean your not a woman." My thought was--I've given birth to 2 children--of course i am a woman!! I just went to a new doctor yesterday and she is sending me for a pelvic untrasound and a hysterosalpingography. She mentioned Ashermans and of course i needed more info so here i am. The stories helped me understand things much better and i am certain this is my problem. This explains the fever i could not get rid of after birth. We will see after the tests, but thank you for this site. I was hoping someone could give me the name of a docotor who specializes in this. I live in northern Illinois. Hope you could help me!!

Brenda

From: (Address withheld)
Date: Thu, 25 Jul 2002 1:05:41 PM Eastern Daylight Time
Subject: Finally a resource available.
To: ashermansbook@yahoo.com

I am happy to see that someone embarked on this condition.

When I was diagnosed in 1995 there was no information on the web. I think the only thing that came up on a search was Arther Ashe the tennis player back then. It wasn't even heard of or discussed.

I hope the physicians will give studies of the long term affects, if any, that happen to women with this condition to determine if there are any further problems that can result later in life.

Sherri

From: (Address withheld)
Date: Tue, 16 Jul 2002 11:33:19 AM Eastern Daylight Time
Subject: thanks so much
To: ashermansbook@yahoo.com

My name is Abbey and I just found out yesterday that I might be suffering from Ashermans syndrome. I had a miscarriage in January of this year. At that time I had a D/C performed. After many months of complaints, I finally switched doctors. I had lost all hope of ever having a baby until I saw your web site. I just wanted to say thank you all for sharing your stories and giving me some kind of hope that I might be able to beat this!

From: (Address withheld)
Date: Mon, 1 Jul 2002 8:54:38 PM Eastern Standard Time
Subject: thanks so much
To: ashermansbook@yahoo.com

The website looks fantastic!!!!!!!!

I hope to post a success story soon!!!!!

Penni

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