Asherman's Syndrome
 



Support Groups

Online Support Group

To join our online support group, see please visit our Contacts page.

Local Support Groups

If you would like to add information about your group, please forward details to: ashermansbook@yahoo.com

Atlanta, GA (USA)

Group members in the Atlanta area get together informally on a periodic basis. If you would like more information about getting in touch with Atlanta area members, contact Jenny at jbdistler@hotmail.com.

Boston

- Sandy would be happy to talk with anyone who has blood clotting issues related to pregnancy as well as anyone who has had multiple miscarriages. She has been thru both with a successful outcome. Please contact her at boomkirk@yahoo.com.

Cleveland, OH

- I would be happy to share any knowledge that I've gained about Asherman's Syndrome, the surgery, pregnancy after the surgery, information about doctors, legal issues (although I cannot dispense legal advice), my experiences with the medical system in Cleveland in regards to Asherman's syndrome, etc. Please contact Apryl.

Connecticut

If anyone just wants to talk and get together for coffee, I will always be there for all my Ashermans sisters. I have been on this journey for awhile, and I am not giving up. Sometimes it makes us feel better to meet others with our condition, to know that we are not alone, and talk about things. If ever anyone wants to talk I will give the best support that I can. I wish everyone well. Please contact Courtney at barfly@optonline.net.

Houston, TX Area

Group member in the Houston, TX area is available for help, advice, meeeting, or support. Contact Mandy at mandy.kyle@sbcglobal.net. Please include Ashermans or AS/Houston in the subject of your email.

Houston or South Texas members

For support and information, please contact Alma at liliocat@yahoo.com. Please indicate if you are an AS member in the email subject.

Minneapolis/St. Paul Area

Please email Julie at juliehanna@hotmail.com if you are in the area and have any questions about Ashermans Syndrome, need support, or wish to talk.

New Jersey

Nancy Lee would be happy to communicate with any woman suffering from Asherman's Syndrome. Nancy Lee got Asherman's after having a myomectomy surgery. She was classified a very severe case requiring 5 laparoscopy/hysteroscopy procedures and 1 more aggressive surgery, a hysterotomy. After being treated by one of our "A" list doctors, she went on to have 2 children post-Asherman's. If you're located in New Jersey, contact Nancy Lee at Nancygenc@aol.com for more information.

New York Area

Meetings are currently being organised for women diagnosed with Asherman's Syndrome for information, support and networking. If you are interested email Susan at susiekunin@yahoo.com.

Please email Tara at reifenwife@hotmail.com if you are in the NY area and you have any questions about Ashermans Syndrome or any of the A-list doctors in the NY area. I am located in upstate NY, in the Catskills Mountains (2 hrs from NYC), and am willing to start and maintain local meetings in Sullivan or Orange County if there are interested parties in or near these areas.

Group members in the New York City area get together informally on a periodic basis. Meetings are currently being organized for information and support. If you are interested email Ella at ella_leitner@hotmail.com Please reference Ashermans Support in your e-mail.

New York City area - Please contact Rosemary at rosemarynurse@yahoo.com if you need support e.g. share experiences w/AS pre-/post-pregnancy, talk about local doctors/hospitals, insurance issues, etc.

Upstate NY - I am open and willing to share my experience with AS. I am in the upstate NY ( Watertown ) area and can give knowledge of what I have been through in my journey. I was diagnosed in March 2008 and have had 2 surgeries and 2 HSG's. My situation continues with TTC. I can be reached at jennmarkham73@yahoo.com.

Northern California

Lori would be happy to share her experience and knowledge about Ashermans, surgery and surgery protocols, treatment options available for miscarriage, information about doctors, and her experiences. Lori can be contacted at mrsgraf23@comcast.net.

Southern California

Anyone looking for information on treatment or on post-AS pregnancy or with any other questions can contact Terry at terrymck14@hotmail.com.

Mountain States Region -- CO and surrounding states (USA)

Group members in the Mountain States Region get together informally on a periodic basis. If you would like more information about getting in touch with area members, contact Jennifer at jennifer_faulkner@yahoo.com or Renee at tkarel@cableone.net.

Philadelphia, PA Area

Group members in the greater Philadelphia area occasionally meet informally. If you would like more information about getting in touch with southeastern Pennyslvania members, contact Allison at a_mponsell@yahoo.com. Allison got AS after a myomectomy for a huge fibroid. After several surgeries and numerous office hysteroscopies and procedures, her AS was corrected. After several assisted reproductive attempts, Allison is blessed to have her first adoptive son. Allison is happy to talk / e-mail about anything that she can answer or help with related to AS, IUIs, IVF & adoption.

If you need emotional support for infertility caused by Ashermans, you can contact me at kapenguin@comcast.net. It has taken me five long years to conceive our first child (due to Ashermans), and I can relate and offer emotional support during your difficult journey.

Wisconsin and Minnesota

Please contact Jacki at jdbruchert@yahoo.com.

UK Support Group

Yahoo support group meets occasionally. Contact Sam at clioshell@aol.co.uk.

Rebecca has had multiple miscarriages and 2 operations to correct her Ashermans and is happy to answer questions relating to her treatment.
Contact Rebecca: rebecca.wibberley@btinternet.com.

Dubai

Anyone looking for Asherman information or treatment related information in Dubai, contact Elena on lenafilim@yahoo.com.

Dutch Support Group

To join the Dutch support group/mailinglist go to www.freya.nl, then "lotgenoten", then "mailinglists". Here you find the link "asherman lijst". Instructions to join the mailinglist you find on this page.

French Support Group

Contact Nathalie at nathalieteske@earthlink.net or Samia at samia_filali@hotmail.com.

Portugese / Brazilian Support:

Contact Lucila at lucilacarvalho@hotmail.com.

Spanish Support Group:

Contact Ana at ana_lopez_sanchez@hotmail.com.

South Germany Area, Stuttgart:

Would you like to meet a member in this area or to receive more information about Ashermans? Please contact Kathrin at ukalmbach@t-online.de.

Australia

- I live in Sydney. I have had 5 miscarriages and 2 hysteroscopy procedures. The 2nd hysteroscopy was successfully performed by one of our "A" list doctors and he was wonderful. I have had 1 child pre-Asherman's and 1 post-Asherman's. Happy to be a contact point for information and support for other women in Australia.
Rebecca.brown@corporatejet.com.au

New Zealand:

Please contact Monica at monica_krishna@yahoo.com. Monica lives in Auckland, New Zealand and is happy to share views and generally keep in contact with you by e-mail.

Camilla Browne is based in Wellington and is very happy to be contacted for information or support. You can reach her on camilla@paradise.net.nz.

Ryl lives in Wellington, New Zealand and has one pre-Asherman’s child. She is more than happy to correspond via email, ryl@rjphotography.co.nz, to share advice or offer support in any way that she can. Ryl can also help with your queries re ACC and how to claim for Asherman’s. Paying for treatment yourself in New Zealand is not necessary if you have received a treatment injury. Most Asherman’s cases are considered to be a treatment injury.

Support for Greek-speaking sufferers:

Please contact cleo_demetriou@yahoo.com. (Cyprus)

Lebanese Support:

Would be glad to offer personal support and encouragement to anyone who suffers from Asherman syndrome. Contact Samia at samia_filali@hotmail.com

Bienvenu sur notre site.
Si vous souffrez du syndrome d'asherman, cherchez des informtiopns a ce sujet ou un support psychologique a ce propos, vous frappez a la bonne porte ............
contactez moi sur samia_filali@hotmail.com.

Israel:

For people in Israel please contact Arica at arisalt@gmail.com She will be happy to share her experiences, offer advice and help however she can.

SINGAPORE & SOUTH EAST ASIA:

For women, expats or locals living in Singapore or South East Asia seeking support, information or guidance please contact Tammy Fontana at fontanatammy@gmail.com.

Middle East / North Africa Support:

ادا كنت تعانين من عادة شهرية خفيفة او معدومة , ادا كنت تعانين من عقم ثانوي او اجهاضات متكررة قد تكونين تعانين من asherman syndrom أي ألتصقات في الرحم , للتعرف اكثر على هدا المرض و سبل العلاج يمكن الاتصال على samia_filali@hotmail.com .انت لست وحيدة بهده الحالة ................المشاركة تريح و تفتح ابواب أمل كثيرا ما نجهــل وجودها.

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